Oral Insulin for Prevention of Diabetes in Relatives
at Risk for Type 1 Diabetes Mellitus
A major goal of TrialNet studies is to delay or prevent diabetes in people with these antibodies.
New: Oral Insulin participant brochure
- Can type 1 diabetes be prevented?
- How can I find out if I am at risk for type 1 diabetes?
- What prevention studies are available?
- If I get into the Oral Insulin Study, what will I be asked to do?
- What is TrialNet?
- Where can I find clinical centers who are recruiting?
Can type 1 diabetes be prevented?
If someone in your family has type 1 diabetes, you and other family members may be at risk. TrialNet is working to delay or prevent diabetes in people at risk for developing type 1 diabetes.
How can I find out if I am at risk for type 1 diabetes?
[ ] Are you 1 to 45 years old AND do you have a parent, child, brother, or sister with type 1 diabetes?
[ ] Are you 1 to 20 years old AND do you have a niece, nephew, aunt, uncle, grandparent, half-sibling or cousin with type 1 diabetes?
If so, you can have blood tests as part of the TrialNet Natural History Study. Complete the online screening, call toll free anytime 1 - 800 - HALT - DM1 (1-800-425-8361) or contact a participating center.
If you do not live near a TrialNet center, call us. We can arrange for you to have your blood test at your doctors office or at a local lab. There is no cost to you.
You will learn the results of your first blood test in 4-6 weeks.
- Only 3-4 people out of every 100 tested will have the antibodies.
- Children under 18 years of age who do not have the antibodies can be retested every year to see if their risk has changed.
If your blood test shows that you have the antibodies, we will invite you to have further blood tests at a study center. These will tell us if you can join a prevention study.
What prevention studies are available?
TrialNet is now testing oral insulin (insulin taken by mouth, not by injection). We will see if oral insulin helps to delay or prevent type 1 diabetes. Results from a recently completed study (called DPT-1) suggest that oral insulin might delay or prevent type 1 diabetes in some people found to be at risk.
If you have antibodies but cannot or do not want to be in the Oral Insulin Study, you can be in the TrialNet Natural History Study. We will monitor you closely for diabetes. In addition, there may be other TrialNet studies that you can join in the future.
If I get into the Oral Insulin Study, what will I be asked to do?
You will take one study capsule each day.
- Half of the people will take capsules filled with insulin.
- Half of the people will take a placebo (capsules that contain an inactive substance).
- You will not know whether your capsules contain insulin or a placebo.
You will come to a study center for blood tests every 6 months, and at other times as needed.
What is TrialNet?
Type 1 Diabetes TrialNet is an international network of researchers dedicated to the study, prevention, and early treatment of type 1 diabetes. (more information)
TrialNet conducts studies to:
- learn more about the factors that put some people at risk for developing diabetes,
- test treatments that could help delay or prevent diabetes, and
- test treatments that might help people keep producing their own insulin when they are first diagnosed with diabetes.
For more information on TrialNet studies, call us today at
- In North America, call 1-800-425-8361.
- In the United Kingdom, call 0117 959 6188.
- In Australia and New Zealand, call 03 9345 2562.
- In Italy and Germany, call 39-02-2643 2818.
- In Finland, call 358-2-313 0000.
TrialNet is supported by the United States National Institutes of Health and Department of Health & Human Services, Juvenile Diabetes Research Foundation International, and the American Diabetes Association.
What clinical sites are recruiting for this study?
If you wish to see if you might be eligible for this study and/or for more information, please contact one of the participating sites listed.
The blood test to determine whether or not you are at risk for Type 1 Diabetes is part of the Natural History study. Please see the list of Clinical Centers for more information.
- Clinical Centers
-
Barbara Davis Center for Childhood Diabetes
University of Colorado
Aurora, CO
800-572-3992 -
Benaroya Research Institute at Virginia Mason
Seattle, WA
800-888-4187 -
Children's Hospital Los Angeles
Los Angeles, CA
888-835-3761
csuh@chla.usc.edu -
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, PA
412-692-5210
Karen.Riley@chp.edu -
Joslin Diabetes Center
Children's Hospital Boston
Boston, MA
800-242-5836 -
Naomi Berrie Diabetes Center
Columbia University
New York, NY
212-851-5425
emg25@columbia.edu -
The Hospital for Sick Children
Toronto, Ontario
866-699-1899 -
Riley Hospital for Children
Indiana University
Indianapolis, IN
866-230-8486
pedsdiab@iupui.edu -
Stanford University Medical Center
Stanford, CA
877-232-5182
-
University of California, San Francisco
San Francisco, CA
415-514-3730
DiabetesClinicalResearch@ucsf.edu -
University of Florida
Gainesville, FL
800-749-7424, dial 1, Ext. 334-0857
hickse@peds.ufl.edu
abraa@peds.ufl.edu -
University of Miami
School of Medicine
Miami, FL
305-243-3781 -
University of Minnesota
Minneapolis, MN
800-688-5252, Ext. 58944
schmi094@umn.edu
pete5601@umn.edu -
University of Texas
Southwestern Medical Center at Dallas
Dallas, TX
214-648-4844
marilyn.alford@utsouthwestern.edu
maria.pruneda@utsouthwestern.edu
- Major Affiliates and Affiliates
-
Akron Children's Hospital
Akron, OH -
Billings Diabetes Center
Billings, MT
800-332-7156 ext. 2307 or ext. 2128
tnelson@billingsclinic.org -
The Childrens Hospital, Buffalo
Buffalo, NY
(716) 878-7268
aclark@upa.chob.edu -
Childrens Hospital of Philadelphia
Philadelphia, PA
267-426-7433
groveran@email.chop.edu -
Children's Memorial Hospital Chicago
Chicago, IL
877-880-4007
mhlyda@childrensmemorial.org -
The Children's Mercy Hospital
Kansas City, MO
888-234-3975
sweigel@cmh.edu -
Children's Research Institute
Columbus, OH
614-722-2650
rowes@ccri.net -
East Tennessee Childrens Hosptial
Knoxville, TN -
Endocrinology Specialists
Greenville, SC -
Humphrey's Diabetes Center
Boise, ID
208-331-1155
research@hdiabetescenter.org -
Montreal Children's Hospital
Montreal, QC -
Nemours Children's Clinic
Wilmington, DE -
Ponce School of Medicine
Ponce, Puerto Rico
787-812-2037
csanchez@psm.edu -
Rocky Mountain Diabetes Center
Idaho Falls, ID
(208) 522-6005
research@idahomed.com -
Sanford Children's Speciality Clinic
Sioux Falls, SD -
University of Iowa, Children's Hospital
Iowa City, IA
866-309-0837
joanne-cabbage@uiowa.edu -
University of Maryland Hospital and MODEL Clinical Research
Baltimore, MD -
University of Nebraska
Omaha, NE
420-559-8555
llarson@unmc.edu -
University of New Mexico School of Medicine
Albuquerque, NM -
University of Rochester
Rochester, NY
Barb Johnson 585-276-3513, barbara_johnson@urmc.rochester.edu
or
Dr. Nicholas Jospe 585-275-7744, nicholas_jospe@urmc.rochester.edu -
University of South Carolina, School of Medicine
Columbia, SC
803-434-6893
johnsonb@gw.mp.sc.edu -
Univ. of Texas Health Science Ctr.
San Antonio, TX
210-358-7586
diabetestrialnet@uthscsa.edu -
Utah Diabetes Center
Salt Lake City, UT -
Vanderbilt Eskind Diabetes Clinic
Nashville, TN
888-VU4-8638 (888-884-8638)
diabetesresearch@vanderbilt.edu -
Virginia Commonwealth University
Richmond, VA
